Landon's Place
Tuesday, October 29, 2013

Our Trip Home, and Dirty Thirty

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Finally getting to my promised post about our trip home to Texas this fall. We had a great time visiting with my family, all our friends, a...
Friday, October 25, 2013

GEMSS

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Landon and I were recently presented with the opportunity to share his story about his life with VLCAD and Mito. A representative from GEMS...
Tuesday, October 15, 2013

Home

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We traveled home (Texas) in late September and were there for two weeks. We had a blast, and the kids really enjoyed seeing all of my famil...
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Saturday, September 21, 2013

I Love Someone with Mito

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I have this decal on the back of my car, you can buy them on Etsy for $10, and all proceeds go to Tgen  and The Mylee Grace Research Fund f...
Thursday, September 19, 2013

Arizona Mito Awareness 2012

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I'm fairly certain I posted the following video before, but it's so educational and informational about Mitochondrial Disease, bring...
Wednesday, September 18, 2013

Mitochondrial Disease compared to a Battery

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Tonight's post will be short and sweet, the above explanation about comparing Batteries to Mitochondrial Disease comes from the Uni...
Tuesday, September 17, 2013

Our Diagnosis and Journey

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I know you've heard me say it time and time again, but truly our Mito family is such an amazing resource. We have connected with some o...
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Regan
I am a proud mom of the 2 most amazing children. Landon is 4 and was diagnosed with non-cardiac VLCADD (Mitochondrial and Fatty Acid Oxidation Disorder) at 9 days old, from an abnormal Newborn Screen. Emeline was born in December 2010, and she is a carrier of an unknown VLCADD DNA Mutation. Landon is the only one in the world with his form of VLCADD and his mutation of the genes, as discovered by a DNA blood test in May 2010. The unknown mutation comes from me. So, we are teaching and learning as we go! Our goal is to help raise awareness for VLCADD, but also Mito disorders as a whole.
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