This is a great Mito Video that I borrowed from another Mito mom. Warning, you made need tissues for it. It really drives the point across and explains it all well and shows you the faces of Mito. Landon is not in this, but I think it is a great resource and tool and everyone should watch it to help bring awareness and to Landon and mito kids like him.
I Love You sweet Landon and am so very, very blessed to be your mommy.'
I am a proud mom of the 2 most amazing children. Landon is 4 and was diagnosed with non-cardiac VLCADD (Mitochondrial and Fatty Acid Oxidation Disorder) at 9 days old, from an abnormal Newborn Screen. Emeline was born in December 2010, and she is a carrier of an unknown VLCADD DNA Mutation. Landon is the only one in the world with his form of VLCADD and his mutation of the genes, as discovered by a DNA blood test in May 2010. The unknown mutation comes from me. So, we are teaching and learning as we go! Our goal is to help raise awareness for VLCADD, but also Mito disorders as a whole.
Love the video! My son also has VLCAD and I ran across your blog when I was googling VLCAD at the beginning of our journey. Thanks for sharing!
ReplyDeleteSo Glad you found us! How old is your son?
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