16 years, 11 months
3 weeks ago
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- Regan
- I am a proud mom of the 2 most amazing children. Landon is 4 and was diagnosed with non-cardiac VLCADD (Mitochondrial and Fatty Acid Oxidation Disorder) at 9 days old, from an abnormal Newborn Screen. Emeline was born in December 2010, and she is a carrier of an unknown VLCADD DNA Mutation. Landon is the only one in the world with his form of VLCADD and his mutation of the genes, as discovered by a DNA blood test in May 2010. The unknown mutation comes from me. So, we are teaching and learning as we go! Our goal is to help raise awareness for VLCADD, but also Mito disorders as a whole.
Landon's VLCADD Awareness Badge
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