I want to start by saying we have the most amazing Mito and FOD friends on the planet. I would have never made it this far without their help, support, information, and general amazingness to help us all that are stuck in this journey. We love and our thankful for each and every one of you, we just don't say it enough.
Mito hit really close to home when Landon lost an amazing friend to this horrible disease last week. She was such a fighter and a real inspiration to us all, as are her parents. They faced what no parent should ever face with the most grace, poise, and strength I have ever seen. I know that I would never have been able to be as amazing as they are. It still reduces me to tears to think about his friend, she touch so many lives in her short time here and I promise princess I will always think of you especially when I see a butterfly.
We must keep raising awareness for Mito & FODs and find a cure so these precious children no longer have to suffer. Please take a moment to watch the following video, and help us raise awareness and educate others on Mitochondrial Diseases.
Mylee's Mito Journey
16 years, 11 months
3 weeks ago
Today I went online and found your blog really amazing, I think you have an amazing creativity I am happy to learn from you even can't be met in the real world.
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