Friday, May 28, 2010

First Shiner!

Landon took a spill the other day at my moms house, and now has his first black eye. Poor guy, he was running and having so much fun and he got ahead of himself and tripped and fell. I felt so bad for him. His eye doesn't look as bad as I imagined it would, but it still breaks my heart. I know he is a little boy, and this is one of many bumps and bruises he will get...but I was hoping he would be a little bit older first.

The scrape under the nose is from a previous fall running at Starbucks. He looks so peaceful, and needless to say it has not slowed him down any at all. In fact other than right after it happened, he has been his normal self. Full of constant movement, curiosity, and love!

Saturday, May 15, 2010

Hair Cut!

Landon got his summer hair cut yesterday! I asked the lady to trim and fade it, yea umm she apparently didn't understand. It is much shorter than we wanted it, but at least he will be in cool in this warm Arizona weather! And, it will grow back. His hair grows really quick so maybe we can go longer between hair cuts this time. The lady wanted to buzz it, and I told her absolutely not, I can do that at home by myself...ha ha.

Front View of his haircut.

Back view of his haircut.

Wednesday, May 5, 2010

Geneticist Appointment 5/4/2010

Scott and I took Landon to Phoenix yesterday for his check up with the geneticist. They did all the usual stuff weight, height, head circumfrance, etc. He hadn't changed much except he gained 6 oz from his 15 month appointment so he now weighs 22 lbs and 8 oz. His head is 50 inches and he is still 33.75 inches long!

They said he looked great. He is on par for development...he is normal and above normal in all areas. They were all very impressed that he now has 30 asl sign words that he uses all of the time. They also loved that he has 3 animal sounds...cow, lion, and pig!

We are keeping his diet the same...20-30 grams of fat a day and the rest low fat. We will be staying on Lipistart until he is 2. He is to stay on his Zinc and on the 4ml of Levocarnitine 3x/day.

The only thing they really brought up was that he should start stringing 2 words together soon (like bye-bye, uh oh, etc). And that hopefully he will start adding more actual words to his vocab, which he will he is still in the normal range according to his pediatrician!

We don't go back until September since he is doing so well. They told us again this visit that everytime they see him, the milder form of the disorder they believe he has. They told us, "He is on the very mild end of the spectrum for VLCADD!" So, we are very happy with this. They also told us we only really have to worry when he gets sick, we are doing everything right with him because he has been so healthy and is doing so incredibly well!

We got our letter to apply for SSI, and now all we are waiting on is to hear back about his labs from his blood draw! They are also supposed to get back to us to see if Insurance will cover a blood test to see where his exact dna mutation is so we can have it to compare to future children. Hopefully they will, but we have to wait and see.

We had a great appointment, and are thrilled with how well he is doing!