Saturday, December 31, 2011

Amazing Mito Friends

We are so lucky to have such amazing friends that we have come to know in the Mito Community. They are such a great source of support and love in the good times, the scary times, and the uncertain times. They will text/talk/help anytime of night and can spread prayers faster than anyone I know. They are such amazing people, and we are so blessed to know each and every one of them.

I was approached by an amazing and strong Mito mama before Christmas about an amazing program she and another Mito mom put together for the Mito kids for Christmas. They had sponsors that wanted to learn more about Mito, or had Mito or suspected Mito themselves. These sponsors wanted to send the kids affected by Mito Christmas gifts, how amazing is that! Landon was chosen to be one of these kids. We received the most amazing gifts all the way from Australia. Landon was sent hand crocheted animals, a super cute kangaroo, and an amazing DVD. We feel so blessed to have been a part of this program and to receive such amazing gifts. They are extending the program to include Birthday cards for the kids. Again, I know I already said it, but we are so lucky to have found such an amazing group of individuals. The support and love is just so amazing. Thank you so much to our sponsor, as well as all of the Mito Wish Upon a Star sponsors. You are truly a blessing to all of us, and the smiles on the kids faces are priceless.

This is a picture of the presents Landon's sponsor sent to him. The kids fight over who gets to carry them around the house, and who gets to take them to bed with them!

Monday, December 26, 2011

Christmas

The kids and I hope that everyone had an amazing Christmas! We went home to visit my family for a week, and it was amazing. We had a wonderful time playing with and visiting the cousins, grandparents, my aunts and uncles, and awesome friends. We feel so blessed that we were able to go home, and the support and love from everyone there is overwhelming and so, so great. We are truly blessed to have such amazing family and friends and really wish we could spend more time with them; hopefully soon.

The kids were spoiled (but not rotten), as always. We went shopping, saw ice sculptures, went down an ice slide (Landon and I), saw Santa (neither kid cried, I was shocked), played, and soaked up all the love and happiness. I promise to post pics soon after I finish my current organizing mission in the house here.

Please keep a few of our mito families in your prayers, there are quite a few of them in the hospital and others struggling with sicknesses this time of year.

Merry Christmas/Happy Holidays to you and your family, hope it was a great one.

Love,
Regan, Landon, and Emeline

Saturday, December 17, 2011

Birthday pics!!

I received E's birthday photos today. They are so amazing, and many many thanks to super talented Michelle Rooney who took the pics for us. They came out absolutely amazing!!! We had some taken for our Christmas photos as well, I can't say enough about how much I love them.

My favorite one of her sitting!



So cute, even though E looks a little unsure of the camera above her!




LOVE this one of him!


She's walking so well now




Holding hands :D



He stole her cake for the smash pics, don't worry she wasn't interested in it. He picked it up and took it behind the bush and helped himself!

Tuesday, December 13, 2011

New Amazing Mito Video

Please take a moment to watch the new Mito video that has come out from the Mitochondrial Guild to aid in fundraising. It is very informative, and full of information.

Click on the link below and it will take you straight to the video on You Tube.
Katelyn's Story


Monday, December 12, 2011

E's 1st Birthday!

E turned 1 on 12/5, I had wanted to wait until I had her 1 year pictures back to post about her 1st birthday. I have the teaser picture back and it is so adorable that I could not wait. She had a wonderful double party with her friend Harrison (his bday is the day before hers) party here at the house with some close friends and some family that came in from NM! She is not a fan of cake at all. She tasted a few bites and was like, 'eh I'm good, thanks mom.' Not at all sure where she gets that from, because those of you that know me well, know one of my main loves in life is yummy cake.

She's walking all over the place now, and refuses to crawl at all. She's 28.3 inches and 18 lbs so still a peanut. Her hair has turned completely white blonde, it's really pretty. Part of me still hopes she gets some red in it, but it's not looking that way! Thanks to all who made her party and birthday a success we are blessed to have you in our lives!

Landon has a geneticist appointment on Friday, so I will update all of that when we get back from Phoenix.

Here's her teaser professional photo! She looks so big!


Here is one of her trying her cake at her party!

Finally, here is her amazing birthday cake a very talented friend made!

Thursday, December 1, 2011




video

A short video of E walking! She took her first steps on November 7 to my good friend Nicole. She has been a little timid since, but really started walking all over the place the last few days!