Team Landon

We are going to be virtually walking in the UMDF (Unitied Mitochondrial Disease Foundation) walk for energy this year. We cannot participate in the walk b/c it is Dec. 19th right after Emeline will be here. So, we have created a team of virtual walkers to help raise awareness for Landon's disorder (non-cardiac VLCAD) and others like it. Please join our team, and you can also order a t-shirt for $7.50. The girls will have "Landon's Ladies" on the back of them, and the one's for the guys will say "Team Landon" on them. Please help us to bring about more awareness to FOAD's and Mito disorders. You can join our team by clicking on the link below!

Team Landon/Landon's Ladies

Amnio Results!

We finally got the amnio results for Emeline on Landon's Disorder (VLCADD). Emeline is only a carrier for the unknown "variant" for the disorder. Which means, that there is no way she possibly has the disorder!! We are so relieved and excited. I am very interested in talking to the geneticist about it at Landon's next appt on the 7th to see what they have to say about it all. We do know it is a variant of the disorder that no one has ever seen before, and they are very interested in it. The theory is that this unknown "variant" is why Landon does not present as or have the classic symptoms and issues as other children with the disorder.

I am most looking forward to not having to repeat the every 3 hour feedings until 6 months that we had to do with Landon, and this baby can be exclusively breast fed since she won't have to have any of the Rx formula's that Landon did...our wallets let out a huge sigh of relief!!!

On a ntoher note: Landon is doing wonderfully. He had pictures taken at Little Gym (see below). They are copywrited by Dodson Photography so please don't copy them. He's a bundle of energy and a ton of fun. He says lots and lots of words now like: mama, dada, hi dach (zach), boomer, yuck yuck, uh oh, tank ooh, bess ooh, hello, bye, uh huh, yes, yea, ma, tons of animal noises and their names" and many others. He also shakes his head no when he doesn't want something, and can jump and get off of the ground! It's crazy to see him change so much week by week!

Playing on the Parallel Bars is fun!

It's a Girl!!

Landon and Zach will be getting a little sister in December, we are so very excited to finally have a little girl in the house!! We are still awaiting amnio results on whether or not she has VLCAD like Landon, but it will probably be September before we know anything more about it. They also took blood from Scott and I since Landon has a never before seen DNA mutation, and they are curious to learn more about it! So, we are excited to see what they can find out about it. Prayers please though, that our little girl is unaffected by the disorder, and that we will get great amnio results.

We have come up with a name for her! We wanted a German name since Scott's heritage is German and mine is Irish...well Landon Patrick is about as Irish as you can get, so we went German this time around. So without further stalling, her name is: Emeline Arley Heise!!

I will post u/s pictures from our anatomy scan (all 3 of them), once I get the good camera charged since our scanner is currently on the fritz!