I found an new Mito blog today. I am really looking forward to sitting down and reading her journey. She has an etsy shop where she sells items she makes by hand and gives a portion of her profits towards Mito research and helping to find a cure. She is also having a giveaway from her etsy shop of items to help bring awareness to others. Her blog is called: Little Free Radical
Finally, a reminder in the form of a picture of why we continue to fight, raise awareness, and pray for a cure. So no kids have to be hospitalized for a simple stomach bug like Landon was in this photo. Absolutely heart breaking that these children (and adults) have to endure so much so early in their lives, and even at all.
This is when Landon was in the PICU at 10 months old b/c a simple gastric bug caused his blood sugar to drop from 84 to 48 (2 points about when seizures begin due to extremely low blood sugar) in a matter of a few short hours. The diaper (white bulge over his hand) is covering his D10 IV so he would not mess with it or try and pull it out. If we would not have known about his VLCADD, it is very likely that he would have slipped into a coma, had major seizures from low blood sugar, and even died. No one would have known to give him a D10 IV, or even to check his blood sugars. It would have been, "take him home and push fluids, it's just a gastric virus." The newborn screening is so important b/c without we would have never known. Please help us spread the word and raise awareness for kids (and adults) like Landon.
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