Books, books, books
1 day ago
Monday, December 1, 2008
Subscribe to:
Post Comments (Atom)
- Regan
- I am a proud mom of the 2 most amazing children. Landon is 4 and was diagnosed with non-cardiac VLCADD (Mitochondrial and Fatty Acid Oxidation Disorder) at 9 days old, from an abnormal Newborn Screen. Emeline was born in December 2010, and she is a carrier of an unknown VLCADD DNA Mutation. Landon is the only one in the world with his form of VLCADD and his mutation of the genes, as discovered by a DNA blood test in May 2010. The unknown mutation comes from me. So, we are teaching and learning as we go! Our goal is to help raise awareness for VLCADD, but also Mito disorders as a whole.
Landon's VLCADD Awareness Badge
-
-
Not sure if I’ve told you this7 months ago
-
-
Overdue updates!5 years ago
-
Audrey Catherine is EIGHT!7 years ago
-
-
2016: Up To Speed8 years ago
-
SUYL Singles: Anna8 years ago
-
-
Summer Fun and Gift Ideas8 years ago
-
Living by Faith9 years ago
-
-
Bye Bye Tube10 years ago
-
Happy 2nd Birthday Harrison!10 years ago
-
The End11 years ago
-
2013 has begun!!!11 years ago
-
On Your Mark...Get Set....11 years ago
-
-
fun times12 years ago
-
-
New Schedule...12 years ago
-
The Exceptionalism of Dogs14 years ago
-
-
-
-
-
-
Blog Design by:
No comments:
Post a Comment